I'm Charlotte I'm 33 born in Sunderland with my mam, dad and brother Craig. I was brought up in what I would say was a relatively normal home. My brother left and went into the navy and my mam’s MS progressed around 20 years ago. My dad just never stopped, all day he was on the go and you would always find him in his office or the garage.

I have to admit, I was rebellious growing up, always in trouble, didn't do well at school, couldn't concentrate and that only got worse. At 16 my dad thought it was in my best interests to move away. I went to the Lake District and it did some good but I couldn't hold a job down, I couldn't settle, so I decided to go back home - but it wasn't for me.

I moved around a lot and had a lot of jobs but I found cleaning and working in a pub as something that I enjoyed - it was different every day and I loved it. The only problem was that I had a temper and I couldn’t deal with rules. I didn't have much family and I felt like I was against everyone. I had mam’s dad, auntie and uncle in the same area but I hardly bothered because nobody understood what was going on and neither did I.

In 2013 I had a son. My dad got diagnosed with prostate cancer and that year we also found out he had Huntington’s disease and that I was also at risk and my son was too.  I was scared, I didn't know what to do. Still to this day, my dad is coming up 70 and he doesn't want to talk about it thats how he deals with it. He is proud of what I'm doing but he believes by him keeping active is why he shows no signs of Huntington's.

I would like Huntington’s disease spoken about more, for doctors to learn about the disease, for more access to help when people are struggling. I would like to be able to help others, guide others and be there for others to speak to.

More about Huntington's in a minute but if anybody whats to donate to my Justgiving page please just click on the link below "DONATION".